My son once got treatment for his brain malformation in our state. But because of our insurance-based health care system, we now must drive 7 hours to California.
I sat on the bathroom floor as my husband lifted our 4-year-old’s limp body from my arms, carrying him into the living room. We worked in tandem, a terrible dance we had memorized to a song on repeat: one cleaning the blood from his face and neck, softly gripping his small fingers, the other holding towels to pinch his nose while simultaneously catching the blood that flowed from his eyes, which were shaking and rolling toward the back of his head.
Just as the sun-kissed hue started to drain from his face, his skin turning a dull pale, the bleeding stopped. We had made it through another episode.
Five years later, we still rely on dedicated specialists at Arizona’s only fully pediatric-focused hospital, Phoenix Children’s Hospital, to help our son who was diagnosed with a brain malformation and cyst at the base of his brain.
On Oct. 30, along with thousands of other families, we received notification that the children's hospital system was no longer in-network with our insurance provider, Blue Cross Blue Shield (BCBS).
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